Taqlima Jahan Nitu is a girl from Bangladesh who at only 10 years of age, must face the eyes of a society that puts her aside only because of how she looks like.
Here is the touching story of Nita, the girl with Progeria Syndrome.
Society can be very cruel sometimes, especially when it comes to differences.
When the human being does not comply with a natural parameter of life, that is, in terms of appearance, he is isolated and that is the case of Taqlima Jahan Nitu.
Despite having her father Kamrul Hasan and her mother Josna who love her unconditionally, many people turn away from her for just being different.
TAQLIMA JAHAN NITU’S LIFE
Nitu was born on 10 September 2007 in Habiganj, Bangladesh. Nitu is the 4th child and has 6 siblings – 3 brothers and 3 sisters.
At birth, her mother did not notice anything strange but around 3 months old, she observed that her body began to change differently when compared to other children. As the days passed, physical changes in Nitu were more noticeable, such as complete hair loss and wrinkled skin.
Her parents got worried and took her to the nearby local doctor, who failed to diagnose it properly and prescribed some wrong medicines (gastric medicines). As a result, Nitu had bad hair fall overnight after consuming those medicines.
Her parents were badly scared and took her to a district level hospital at Sylhet. The doctors at that hospital referred her to Dhaka for better treatment.
Her parents couldn’t wait anymore and took her to a hospital in the Dhaka, Bangladesh for getting some diagnosis.
After conducting a couple of tests, the doctors concluded that Nitu is suffering from a rare genetic disease called Progeria Syndrome that causes premature ageing.
Unfortunately, the cure for Progeria has not yet been found. And the average life of children suffering from this syndrome does not exceed 13. After hearing this Nitu’s parents were left heart-broken.
However, they did not give up their hopes. They still have faith that there may be a cure for their child and she too will lead a normal life like other children.
Currently, Nitu is studying in class 2 at a local school and she is highly interested in studies.
Despite her severe illness and pain, she is a happy and active girl. She likes to play and roam around.
As a young girl, she likes to play with toys and her doll is her favourite toy.
ACCEPTING THE LIFE POSITIVELY
She knows that she is different from others but it doesn’t bring her down.
Even though Nitu has accepted her condition with a positive smile, the cruel society fails to accept her. She is ignored for her different look.
While kids of her age are enjoying their life, Nitu is growing older and slowly getting isolated from the society.
Even she wants to run, play, jump like other kids. But no kid wants to play with her. They are scared to even look at her.
For this reason, Nitu has no friends and only plays with her sisters at home. She avoids going to public places as people pose an alien attitude towards her.
Taqlima daily fights with the weird looks and offensive comments from the society who ignores her for how she is.
Some people even call her as a curse and treat her in an ill manner.
Instead of asking what the syndrome is about, they prefer to say nasty things and give hurtful looks to a girl who has not done anything but being born with Progeria Syndrome.
As a child, living with such a difficult condition is certainly challenging, but what hurts Nitu more is the strange reactions of people.
Offended by the harsh reality of society, Nitu often questions her mom why Allah has sent her and why is he not taking her away.
According to doctors, she may survive until the age of 13. Her whole life has been subject to constant bullying.
She had suffered enough pain which is too big for her age. So let her be happy and peaceful at least in her last days. We cannot increase her lifespan, all we can do is be a little kind and compassionate towards her.
At the end of the day, we are all humans. Deep inside, she is no different from anyone.
Just give her amazing memories and make her short life well worth celebrating.
NITU AN INSPIRATION
Despite experiencing so many sufferings and bullying, she still has a love of life and gives her parents so much joy.
Undoubtedly, Taqlima Jahan Nitu is a strong girl who isn’t afraid to dream and we shouldn’t be either. That’s where we should take inspiration from. Go, Nitu!
What is Progeria Syndrome?
Progeria, also known as Hutchinson-Gilford’s Progeria Syndrome (HGPS) is a genetic disease that affects very young children causing them to age prematurely.
But, What causes Progeria?
It is known to be caused by a mutation in the LMNA gene and causes the production of an abnormal protein called progerin that replaces the correct protein and induces an incorrect develop of the cell nucleus giving rise to genetic expressions that make the patient look from outside, in a characteristic way.
Children with Progeria look normal at birth, so the disease is hard to detect until the first symptom begin to appear. This first symptoms usually happens approximately between 12 and 24 months old.
They suffer from pathologies typical of an old age person and without the discovery of new treatments, all children with Progeria will have an average life expectancy of 14 years.
The intellect of children with progeria diagnosis is not affected. Despite the important and obvious physical changes in their bodies, these extraordinary children are intelligent, brave and full of life.
And Nitu is a clear example of it who goes to school and likes to do the same as all girls of her age – makeup, draw and play.
The most common symptoms are short stature, dry and wrinkled skin, hair, eyebrows and eyelashes loss, a large skull, protruding cranial veins, rigid joints and the presence of typical degenerative disease of old age, such as arthritis.
Why is the Average Life so Short?
The cause of death in children with Progeria is arteriosclerosis, a heart disease that affects people who have aged normally.
Arteriosclerosis appears when arteries are deposited with fat, cholesterol, calcium and other substances in the blood until a plaque is formed.
Over time, the plaque hardens and narrows the arteries, which limits the oxygen flow in blood but for those who suffer from progeria, arteriosclerosis does not wait, it is the leading cause of death in young children and teenagers.